Conference programme

European Paediatric Psychology Conference 2023

The full conference programme, including the abstracts of all the talks can be found and downloaded here.

Organized by the European Paediatric Psychology Network, in collaboration with the Society for Pediatric Psychology, Division 54 of the American Psychological Association

Conference chair
Line Caes

Scientific committee
Scientific committee Co-Chairs
Rocio de la Vega
Nicola Scott
Yvonne Vance

Scientific committee members
Michelle Ernst
Christine Sieberg
Tine Vervoort
Eileen Chaves
Kathleen Lemanek
Kindell Schoffner
Sanita Ley

Information on CE credits:

Participants who are claiming CE credit should receive evaluation surveys emailed from Sunnye Mayes, the SPP Member at Large for Continuing Education. Emails will be sent following each plenary and CE-eligible symposium session. If you are interested in obtaining CE for any of the sessions, please complete the relevant evaluation forms and you will receive the CE certificate via email within 4-6 weeks. The deadline for completion of CE surveys will be September 30, 2023. Please direct any questions or requests regarding this process to Sunnyem@med.umich.edu.

PROGRAM WEDNESDAY, 30 August 2023

8:30-11:30

Registration open
Pathfoot Crush Hall

9:30-11:00

Practical workshops (INCLUDED IN THE CONFERENCE REGISTRATION FEE!)
Seminar rooms Pathfoot

Workshop 1: Clinical and Academic mentoring (relevant for both mentees & mentors) (Christine Sieberg & Lauren Heathcote) – Seminar room PD3

Workshop 2: Connection, cooperation and adaptability: Using DNA-V and the ProSocial framework to improve outcomes for children & young people, families and staff and teams (Jim Lemon) – Seminar room PC21

Workshop 3: Graded exposure treatment for adolescents with chronic pain (GET Living) (Laura Simons & Lauren Harrison) – Seminar room PD1

Workshop 4: Leadership in Practice: Supporting developing leaders in Paediatric Psychology (Helen Griffiths & Karen Steinhardt) – Seminar room PC22

Workshop 5: Taking a biopsychosocial approach to childhood obesity: how psychology can contribute across the system (Michelle Clark, Kerstin Hunter & Niall Anderson) – Seminar room PC23

11:30-12:00


12:00-13:00

Opening ceremony (Moderator: Line Caes)
Lecture theatre Pathfoot

Lunch
Pathfoot Eatery

13:00-14:00

Plenary Session 1: Jim Lemon (Moderator: Nicola Scott) (CE credits offered)

‘Well, I know who I am, but I’m not sure why I’m up here speaking either…’ Seeing as I’m here now, this is how Paediatric Psychology collaborations are using Contextual Behavioural Science at the individual, team and international levels.
Lecture theatre Pathfoot

14:00-15:30

Parallel symposium session 1 (CE credits offered)

  1. Adaptations to Intervention Delivery of a Family-based Pediatric Weight Management Program Stemming from the COVID-19 Pandemic (Katherine Darling) – ONLINE
  2. Lending an Ear during a pandemic: Lessons learned from a pilot randomised control trial of an online self-management programme for adolescents with arthritis in Ireland (Hannah Durand) – ONLINE
  3. Protecting HPV PROTECT: Unexpected challenges and adaptations in executing a provider focused HPV vaccine intervention for pediatric cancer survivors during the COVID-19 pandemic (James L Klosky)
  4. Changes made to the iAmHealthy Schools Rural Pediatric Obesity Intervention Program at the onset of the COVID-19 Pandemic: Intervention and Measurement (Ann M Davis)

  1. It’s happening over there, so why should we care? (Gerald Koocher)
  2. Current International challenges in peds psych research: results from an international survey (Rocio de la Vega)
  3. Recommendations to streamline ethical approval processes for international pediatric studies (Line Caes)
  4. Bringing it all together – International Psychology Research Ethics in Action (Eileen Chaves)

  1. Checking IN: The Development of an Electronic Tool in the Pediatric Outpatient Setting to Identify Pediatric Psychosocial Distress Domains that Interfere with Quality of Life (Lori Wiener)
  2. Health-related quality of life of children and their parents 4 years after admission to PICU (José Hordijk)
  3. Psychometric evaluation and inter-rater agreement of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System (PROMIS) in children with sickle cell disease (Maud van Muilekom)
  4. Quality of Life for Youth with Critical Congenital Heart Disease (cCHD): Impact of Income Disparities and Facilitative Parenting Practices (Ana Valentina Garcia Villasana, ONLINE)

  1. Adolescents and young people’s pain perceptions of their pain related to Juvenile Idiopathic Arthritis (Daniela Ghio)
  2. Children’s pain is frequently ignored, for Black children with sickle cell disease it is even worse: improving understanding of their pain experience (Anna Hood)
  3. Pain communication in children and young people with chronic musculoskeletal pain: Key stakeholder perspectives and potential for intervention (Rebecca Lee)
  4. Development and Validation of a Paediatric Breakthrough Pain Assessment Tool (Christina Liossi): ONLINE

15:30-16:30

Coffee break + poster session 1
Pathfoot Crush Hall

  1. Childhood in the hospital: children’s perspectives on play during hospitalization (Kelsey Graber)
  2. A mixed-methods approach towards understanding the relationship between chronic pain and suicidal distress in adolescence (Verena Hinze)
  3. A qualitative approach to select patient reported outcomes within pediatric physical therapy (Dorinde L. Korteling)
  4. Are we meeting the needs of families? Community and social resource needs of parents differ based on sociodemographic characteristics (Breana L. Bryant)
  5. Barriers to Care Experienced by Caregivers of Children with Cancer: Social Problem-Solving Skills as a Resilience Factor (Taylor M. Dattilo)
  6. Body mindsets are associated with pain and pain-related risk and resilience factors in children with chronic pain (Emily Dowling)
  7. Breaking Barriers, Building Bridges: How Demographic, Disease-Specific, and Parental Factors Influence Access to Healthcare for Children with Rare Diseases (Susanne Wehrli)
  8. Childhood cancer diagnosis during the COVID-19 pandemic: the parent perspective of the impact on the family (Anna Jones)
  9. Children’s experience of the Aim to Decrease Anxiety and Pain Treatment (ADAPT) for Functional Abdominal Pain Disorders within a Swedish community paediatric setting- preliminary results (Emma Ramsay Milford)
  10. Parent-reported Pain Intensity Predicts Cognitive Flexibility in Paediatric Patients with Sickle Cell Disease (Yuhui (Iris) Chen)
  11. Cognitive Disengagement Syndrome, Depression, and Self-Perception among Pediatric Brain Tumor Survivors (Eva Darow)
  12. Development of a multimodal personalized executive function intervention for school-age children with complex congenital heart disease (Alenka Schmid)
  13. retracted
  14. Digital self-management and peer mentoring intervention for young adult survivors of childhood cancer transitioning to adult healthcare (Katie A. Devine)
  15. Eating habits profiles and physical activity levels of AYA cancer patients and survivors (Sandra Soca Lozano)
  16. EF and Parenting as Predictors of Health Care Self-Efficacy in Adolescents with Spina Bifida (Olivia E. Clark)
  17. Empowering New Habits and Nutrition after the Cancer Experience (ENHANCE): An obesity prevention and intervention for U.S. adolescent and young adult cancer survivors (Melissa A. Faith)
  18. Establishing a pathway for Mental Health screening in Paediatric Epilepsy Clinics (Bethan Phillips)
  19. Exploration of Pediatric Life Satisfaction, Pain Interference, and Participation in Youth Adaptive Athletes (Jessica Hoehn)
  20. Facilitators and Barriers towards Implementing Shared Decision-Making in Pediatric Physical Therapy: Perspectives from Diverse Stakeholder Groups (Selina Limmen)

16:30-17:30

Short oral presentations session 1 (Moderator: Kathleen Lemanek)
Lecture theatre Pathfoot

  1. Implementation of a Novel Electronic Distress Screening Tool in Pediatric Medical Specialty Clinics (Amii C Steele, Megan McComas, Lori Wiener, Sima Bedoya, & Maryland Pao)
  2. Meaningful Clinical Change and Treatment Responsivity in Pediatric Psychology Intervention Research (Michael J. Dolgin)
  3. Gritting Through It: Caregiver Grit as a Source of Resilience in Families Affected by Pediatric Cancer (Christina Sharkey)
  4. Parental experience and understanding of parent-provider discussions of treatment for infants with ureteropelvic junction obstruction (Cindy Buchanan)
  5. Reducing caregivers’ perceived oral chemotherapy adherence barriers for United States youth with acute lymphoblastic leukemia (Melissa A. Faith)
  6. The stage conductors behind the cradles: Reflections on the role of family therapy alongside paediatric clinical psychology provision for a neonatal intensive care unit (Tessa Saunders)

18:00-19:00

 

Social program
Mindful walk around loch

Weather dependent: Join us for a relaxing walk around the loch. The loch is an important part of community life at the university. It’s 2.5km path is perfect for strolls, jogging or just sitting down to enjoy the peaceful views. The views are spectacular and different every day with the ever-changing weather and the passing of the seasons. To join our mindful walk around the loch, come to the Pathfoot reception by 18:00. The walk around the loch takes about 45min, and is an opportunity to take a relaxing stroll in nature, while exploring our local wildlife (e.g., swans, crows, …) and reflecting on a busy first day of the conference. The walk will end at the reception of the Stirling court hotel.

PROGRAM THURSDAY August 31, 2023

8:30-9:00

Registration
Pathfoot Crush Hall

9:00-9:15

Opening Day 2 (Moderator: Rikard Wicksell)
Lecture theatre Pathfoot

9:15-10:15

Plenary Session 2: Helen Griffiths (Moderator: Yvonne Vance) (CE credits offered)
“People can’t see your values and intentions, but they can see your behaviour”: Leadership in Paediatric Psychology
Lecture theatre Pathfoot

10:15-10:45

Short coffee break
Pathfoot Crush Hall

10:45-12:15

Parallel symposium session 2 (CE credits offered)
Seminar rooms Pathfoot

  1. Background on FNSD: What do pediatric psychologists need to know? (Kelly Maynes)
  2. Inpatient Evaluation and Management of Pediatric Functional Neurological Symptom Disorder (FNSD) (Kris Kullgren)
  3. Words Matter. The Role of Psychologists in Functional Neurological Symptom Disorder (FNSD) Educational Efforts for Patients, Families, and Interdisciplinary Providers (Cassie Ross)
  4. Outpatient Treatment of Pediatric Functional Neurological Symptom Disorder (FNSD) (Aaron Fobian)

  1. Enhancing the Quality of Care in Pediatric Sickle Cell Disease (Kathleen L. Lemanek)

  2. Matrix and Guidelines Guide Implementation of Standards of Psychosocial Care of Children with Cancer and their Families (Amanda L Thompson)
  3. Pediatric Psychosocial Preventative Health Model (PPPHM): A scoping review supporting screening and informing care delivery (Anne E. Kazak)
  4. Using Patient Participation feedback to inform a collaborative model of care for a newly formed regional Complications of Excess Weight (CEW) service based in Cambridge. (Viktoria Cestaro)

  1. Comorbid Developmental Disabilities in Pediatric Obesity (Crystal S. Lim)

  2. Developmental Disparities in Pediatric Sickle Cell Disease (Cynthia Karlson)
  3. Brain, Neurocognition, Health related quality of life and adaptive functioning in children and adolescents with severe chronic kidney disease (Sophie Lijdsman)

12:15–13:30

Lunch break with mentor lunch
Pathfoot Eatery

13:30-14:00

European Paediatric Psychology Network Ukraine Taskforce Webinar Series: Supporting Mental Health Providers in Ukraine (Lauren Potthoff & Olya Chymbir) (Moderator: Rickard Wicksell)
Lecture theatre Pathfoot

14:00-15:30

Parallel symposium session 3 (CE credits offered)
Seminar rooms Pathfoot

  1. Development of a Difficult Asthma (DA) MDT Clinic with the psychologist as a core team member (Amy Shayle)
  2. Pediatric Psychologists as Catalysts for Youth Mental Health Education during a Pandemic: Social Media, Interactive Webinars, and Celebrity Partnerships (Meghan Walls) – ONLINE
  3. Psychology Adding Value: Epilepsy Screening (PAVES)- A Mental Health Screening and Intervention Pathway for Children and Young people with Epilepsy (Kirsten Verity)
  4. Using Competencies to Demonstrate Added Value of Pediatric Psychology within Pediatric Palliative Care Teams (Amanda L Thompson)

  1. Patient Reported Outcome Measures in clinical practice: Barriers and optimizations in the KLIK PROM portal (Maud van Muilekom)

  2. Towards standardized generic Patient Reported Outcome Measurement for children in specialty care; results from the Dutch “Outcomes-Based Healthcare Program” (Karolijn Dulfer)
  3. Optimizing patient-reported outcome measurement in pediatrics: Translation, validation and implementation of PROMIS® (CATs) in the Netherlands (Michiel Luijten)
  4. Participation and education of patients about PROMs in clinical practice. (Hedy van Oers)

  1. Biomarkers, behavioral science, and intervention: Where are we? Where do we need to go? (Rikard Wicksell)

  2. The missing mechanistic link: Improving behavioral treatment efficacy for pediatric chronic pain (Christine B. Sieberg)
  3. What can we learn from neuroimaging and experimental psychology on the role of pain-related distress in chronic pain? (Inge Timmers)
  4. Using biomarkers to evaluate prospective relationships in pediatric pain: Can Quantitative Sensory Testing (QST) be useful? (Christopher King) – ONLINE

15:30–16:30

Coffee break + poster session 2
Pathfoot Crush Hall

  1. “A whirlwind of everything”: The Lived Experience of Adolescent Girls with Co-Occurring Chronic Pain and Mental Health Symptoms (Sharon Bateman)
  2. Flourishing among children and adolescents with epilepsy only, epilepsy plus an emotional, developmental or behavioral comorbidity, and typical peers (Jessica Emick)
  3. Gaze Fixation and Visual Searching Behaviors during an Immersive Virtual Reality Social Skills Training Experience for Children and Youth with Autism Spectrum Disorder: A Pilot Study (T. David Elkin)
  4. Happiness for Improvement of Premature and Parental Outcome (HIPPO): determining parental stress during and directly after NICU admission (Hedy van Oers)
  5. Hidden Costs of Rare Pediatric Diseases: The Invisible Burden on Child Mental Health (Susanne Wehrli)
  6. Holding the needs of neonatal families in mind: a proposed model for paediatric clinical psychologists and the wider neonatal workforce (Sarah-Jane Archibald)
  7. Identifying and Managing Eating Disorders in Pediatric Obesity Treatment: Current Practices in Weight Management Programs throughout the United States (Eileen Chaves)
  8. Identifying the Psychological Support Needs of Parents and Young People with Inherited Metabolic Disorders (Kim Clarke)
  9. Illness Uncertainty, Caregiver Self-Efficacy, and the Mediational Effect of Problem-Solving Strategies (Alexandra M. DeLone)
  10. Improving Access to Treatment in Pediatric Primary Care: A Mixed Methods Assessment of the STAMP Intervention (Leah Orchinik)
  11. Innovative non-pharmacological interventions for pain management in sickle cell disease (Mariana Cecilia e Silva de Oliveira Nery)
  12. The Effect of Stigma of a Non-Visible Health Condition on Well-Being (Caroline, Heary)
  13. Measures of identity in young people with long-term physical health conditions: A systematic review (Tess Rugg)
  14. Measuring recovery in pediatric chronic pain (Emma Biggs)
  15. Mental and social health of children and adolescents in the Dutch general population before, during and after the COVID-19 pandemic (Michiel A. J. Luijten)
  16. Mental health support for Children and Young People with Duchenne Muscular Dystrophy – who, when and how across the United Kingdom (Chloe Geagan)
  17. Mixed methods analysis of the unmet needs of caregivers of young childhood cancer survivors (Eva Darow)
  18. Neurodevelopmental Outreach Project Trial at East Midlands Congenital Heart Network (Vicky Elliott)
  19. Parent Mental Health: An Important Consideration in Pediatric Tube Weaning Treatment (Dana Bakula)
  20. Psychosocial Functioning of Transgender Youth Seeking Psychological and Medical Services in a Comprehensive Pediatric Gender Clinic (Anthony Alioto)

16:30–17:30

Short oral presentations session 2 (Moderator: Eileen Chaves)
Lecture theatre Pathfoot

  1. Associations between childhood emotional abuse and adolescents’ somatic complaints: the role of mentalization, internalizing symptoms and identity (Dovilė Mikučionytė)
  2. Primary School Children’s Experiences of Managing Long Term Conditions: Systematic review and thematic synthesis of qualitative research (Daniela Ghio)
  3. Perceptions of recovery among youth with chronic musculoskeletal pain and their parents (Alexandra Neville)
  4. Prediction of Social Difficulties in Youth with Congenital Heart Disease: Comparison of Neurobehavioral Factors That May Account for Risk (Amber Riggs)
  5. SPINE Program: Specialized Progression of Independence and Wellness for Adolescents with Spinal Cord Injury: Program Description and Initial Outcomes (Kindell R. Schoffner)
  6. Secondary data analysis using pediatric databases: Lessons Learned (Jessica Emick)

19:00-

Conference dinner with Ceilidh!
Stirling Court Hotel

The conference dinner will start at 19:00 in the Stirling Court Hotel restaurant, we will be gathering in the bar. Any drinks bought at the bar before the start of the dinner will be at your own expense, but the 3 course meal and wine/water served during dinner is included in the registration fee and comes at NO extra cost to you. At the end of the 3 course meal, you will have a chance to stretch your dancing muscles within a Scottish Ceilidh. Originally the word Ceilidh (kay-lee) comes from the Gaelic word for ‘gathering’ or ‘party’ and still to this day means a fun filled night of dancing on Gaelic folk music amongst great company! A local band will entertain us with Gaelic folk music and everyone can take part in the traditional dances, as a “dance caller” will walk us through the dance steps. So there’s no need to be worried or shy!

PROGRAM FRIDAY, SEPTEMBER 1, 2023

8:00-9:00

Registration
Pathfoot Crush Hall

9:00-9:15

Opening Day 3 (Moderators: Nicola Scott, Kim Oostrom, Caroline Heary)
Lecture theatre Pathfoot

9:15-10:15

Plenary Session 3: Laura Simons (Moderator: Rocio de la Vega) (CE credits offered)
When does collaboration become team science?
Lecture theatre Pathfoot

10:15-11:15

Coffee break & poster session 3
Pathfoot Crush Hall

  1. Clinicians’ perspectives of the challenges in treating adolescents with co-occurring chronic pain and mental health symptoms (Sharon Bateman)
  2. Peer Interaction Interventions in Paediatric Chronic Pain: A systematic review of facilitators, barriers, and outcomes (Kate Roberts)
  3. Physical appearance and body-related changes experienced by teenage and young adult (TYA) cancer survivors: A qualitative systematic review (Alyxandra Hamilton-Smith)
  4. Provider perspectives on trauma informed care education: if we build it will they come? (Kristin A. Kullgren)
  5. Psychosocial functioning in adolescents with a congenital heart disease: The role of attachment and emotion regulation (Saskia Mels)
  6. Sleep Disturbance and Frequent Pain in Pediatric Sickle Cell Patients (Hannah M. Spears)
  7. retracted
  8. The Effect of Online Experiences, Connection, and Resilience on Sibling Adjustment to Pediatric Cancer Stress (Sarah Wawrzynski,)
  9. Moved to Thursday Poster session; poster #12
  10. When Caregivers Decline Care in Acute Pediatric Medical Settings: A Clinical Practice Guideline (Cassie Ross)
  11. The use of pediatric PROMIS® item banks in Dutch boys with haemophilia (Lorynn Teela)
  12. Understanding and overcoming factors preventing parents of children with life-threatening illnesses engaging in interventions to improve their sleep: a three phase study (Ellen M. Henderson)
  13. Unmet needs of youth with chronic pain without access to multidisciplinary pain management (Rocio de la Vega)
  14. Utilization and Sustainability of an Integrated Pediatric Primary Care Psychology Service in the United States (Meghan McAuliffe Lines,)
  15. Utilization of Bilingual Resources: Exploring Perceived Barriers for Behavioral Health Providers Working with Spanish-Speaking Families (Anne Malkoff)
  16. retracted
  17. Paternal Roles on Biopsychosocial Outcomes of Children with Cancer: A Scoping Review (Anna Olsavsky)
  18. Project Pivot – When Implementation is the Barrier to Effectiveness and a Virtual Reality RCT Becomes a Single Arm Feasibility Trial (Courtney W. Hess)
  19. Feasibility of a generic digital group treatment for adolescents with chronic disease and their parents (Elisabet Bergenmar Ivarsson)
  20. How can we understand the barriers and facilitators to communicating chronic pain in medical and social settings in emerging adults aged 18-30 years old (Emma Scott-Smith)

11:15-12:30

EPPN Town Hall (EPPN co-chairs: Rikard Wicksell & Line Caes)
Lecture theatre Pathfoot

12:30–13:30

Lunch break
Pathfoot Eatery

13:30 – 15:00

Parallel symposium session 4 (CE credits offered)
Seminar rooms Pathfoot

  1. A Randomized Controlled Trial (RCT) Examining the Effect of a Psychologically Informed Video Series to Treat Adolescents with Patellofemoral Pain. Or, How Pediatric Psychologists Can Better Disseminate Care through Collaborating with Allied Health Professionals. (Jessica Hoehn)
  2. Bridging the Gap Between Academia and Industry: Solutions for Developing Digital Interventions with Limited Funds and Technological Skills (Lauren Harrison, Instructor)
  3. Implementing a Behavioral Health Four-Session Concussion Treatment Program (Maia Noeder)
  4. Mental Health Intervention for Children with Epilepsy (MICE): A randomized controlled, multi-center clinical trial evaluating the clinical effectiveness of psychological therapy in addition to usual care compared to assessment-enhanced usual care alone for children and young people with common mental health disorders and epilepsy (Sophie Bennett)
  5. mrI sCAN: A low intensity psychological intervention to increase the number of young children who undergo MRI scans without General Anaesthetic (Sinead Hannan)

  1. A new experimental approach to studying and training pain-related attention in children with chronic pain (Lauren Heathcote)

  2. Probing parents’ empathic responses to their child’s pain using an experimental paradigm (Inge Timmers)
  3. A window into the multifaceted neurophysiology of pain in adolescence: From healthy neurophysiology to altered cortical functioning in Juvenile Fibromyalgia (Marina Lopez Sola)

  1. Engaging Community Members in the Development a Web-Based Single-Session Intervention for Adolescent Siblings of Youth with Cancer (Christina Amaro)
  2. Adapting Evidence-Based Interventions for Delivery in the Community: The Surviving Cancer CAMPetently Program (SCCamp) (Melissa Alderfer)
  3. Family Bonding as a Result of the Family Talk Intervention in Pediatric Oncology—Siblings’ Experiences (Kerstin Ivéus)

15:00 – 15:30

Conference closing & Award ceremony (Moderator: Line Caes)
Lecture theatre Pathfoot